CALLUM WYLIE FOUNDATION

Awareness  |  Acceptance  |  Action

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Callum’s story

Callum had Aspergers, in conjunction with sensory processing difficulties, a lifelong developmental condition affecting how he perceived the world and interacted with others. Trying to keep pace with ‘our’ world with its illogical social nuances often proved agonisingly awkward for Callum.
Callum was a tall, good looking, talented, and extremely gifted sportsman and musician, adored by his family and respected by his peers. Skiing and mountain biking were Callum’s passions and exercise was a necessary antidote to calming his sensory overload.

Injury was a by-product of the extreme sports that Callum liked and he was well known in A&E! In December 2017 the latest injury took its toll mentally, it required surgical repair, then 9 months of rehabilitation, clearly too much for Callum to cope with. Following a very happy Christmas at home with his family and cousins, Callum’s mood changed; he withdrew into himself and gradually stopped communicating with his parents. In a short space of time, Callum’s isolation became much worse, his mood darker. Throughout January his parents sought every avenue of help but were continually told that, as he was 18, Callum would have to seek help for himself. Callum had NEVER sought help from anyone before, he wouldn’t have known how to begin to ask for help.

the dilema

There was no service, professional or otherwise, that could provide advice or support for Callum or his parents, Kev and Charly.
On Tuesday January 30th 2018 Callum attempted to take his own life. His father resuscitated him, but Callum died two days later. 

The lives of Charly, Kev and his sister, Bee have all been shattered as a result of Callum’s tragic death, and they really don’t want this to happen to another family.

At least four people had a new chance at life thanks to Callum’s organs.

A Square Peg In A Round Hole

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OUR AIMS

Raise awareness in schools and colleges about the hidden complexities faced by young people with Asperger’s/high functioning autism and the need to manage their education accordingly.


To set up a service to help vulnerable adolescents with Asperger’s/high functioning autism in times of depression, anxiety, and crisis.



To help parents/carers cope and support their children in times of crisis

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ORGAN DONATION

Organ donation law in Wales. The legislation for Wales is 'deemed consent'. This means that if you haven't registered an organ and tissue donation decision (opt in or opt out), you will be considered to have no objection to becoming a donor.

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Organ donation. Have you discussed this with your close family? Do you know their wishes? If you live in Wales do you know if they opted out?
Here is why it is so important: the UK is the second lowest donor country in Europe, there are currently 7000 people waiting on tenterhooks for transplantation. In the last 12 months 1634 people became organ donors resulting in 3519 transplants, consent rates being around 62%. The biggest obstacle is family refusal, mostly because the family were unaware of their deceased intentions.
3 people die everyday in need of transplant, due to a shortage of people willing to donate organs.
In Wales there were 21 cases where families overrode their relatives decision to donate organs. This could have resulted in 65 people receiving transplant. Each donor will give hope and possibly save the lives of 3 people. Callum helped save 4 lives, we are so proud of him!
Please, please have those conversations. I know it is hard, but a lot harder if you are at the stage of having to make the decision in A&E, or in ITU. Thankfully we knew Callum’s decision because we had the conversation when he was alive....

Our Projects

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